Thursday, 18 March 2010

Yooo Hoooo?

I think I've turned invisible you know.

Not including my mum and brother, I have Nathan, and my best friend June.
I have 782 texts in my mobile inbox because I never get round to deleting them, over 700 of those 782 are from Nathan, my received calls list consists of June and Charlottes school.

I know this reads as a WOE IS ME post and an I WANT ATTENTION NOW!! post, but it's not that, it's just another symptom of the ME/CFS thats invisible. The loss of friends, work and a social life, a part of this god awful disorder that no-one even thinks about.

I feel so cut off and isolated being stuck in the house and 100% reliant on Nathan if I'm up to going out but even more so when you suddenly realise it's been weeks or more since you heard from people you miss.

I don't know what bought this to the forefront for me today, most likely the incredibly patronising and aloof tone of the woman from the council today when I said I couldn't make it to the office to bring in some paperwork, I said I couldn't make it because I have ME, not because I couldn't be arsed. I WOULD come to your lovely office if I could, I would hop, skip and dance and relish in the sunlight and fresh air that this time of year brings if I could. But I can't, and DON'T sodding patronise me because I'm ILL, not LAZY.

2 comments:

  1. there are always idiots hun try and rise above it and dont be fobbed off!!! Make then send you the damn papers.I wish I lived nearer to you I'd come and visit :\

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  2. I will second that. Idiots can be found everywhere. When I was on a sick leave due to my CFS, I had to go through regular Evaluation Committees. When I told a doctor that I feel tired, he told me "I 'm tired too, but nobody's giving me any sick leaves". Hmm. Ok.

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